underneath

what sleeps in your heart,

is the truth of it

curled up like a cat,

soft and purring

but indifferent

 

 

what sleeps in your heart

could it be that trapped voice,

silenced

like one drowning

under ice

who sees the surface

but is unable to break through,

mouth full of water

on the sharp thin verge of surrender

to the overwhelming

weight of cold 

what sleeps in your heart

is who you really are

and if you don’t see that

you may sink to the bottom

alone

and never wake up

 

 

 

the proper attire

 

 

 

 

 

 

 

 

 

 

 

I donated the dress I wore to my father’s funeral

gave it away

placed it in the bottom of a bag

under an old coat and some shirts

the dress was nice

but I have no need to wear it again 

my father died in spring

and it was difficult at a time like that

to figure out what to wear

the lightness of the season counterbalanced

with the needs of a somber occasion

 

but it wasn't a somber dress

in fact, it was almost exuberant

a large scale print of abstract flowers

splashed across a flouncy skirt

it was sleeveless, with an exaggerated collar 

my choice for necklace 

was the only jewelry he ever gave me

hematite beads,

once known as blood stone

the strand doubled around to fill in the empty space

created by the open V-neck 

his death was a surprise, he wasn’t sick,

they say my father died in his sleep,

peacefully, on a warm spring evening

flowers blooming in the dark outside his window

as colorful as my pretty dress

he hated that dress
so I don't need it anymore 

 

how many dishes do we need?

Twenty-three years ago when I first moved into Michael’s small urban apartment he had 4 plates, 3 bowls and a few mismatched mugs. So I added a set of dinnerware to the growing list of things we should buy. He looked confused and said, “There’s just two of us, how many dishes do we need?” I laughed and thought, typical guy. Not long after, we bought a nice service for eight...eight of everything -- bowls, dinner plates, salad plates, dessert plates, cups & saucers. The set filled our kitchen’s minimal cupboard to bursting, but I knew someday we’d have a house to put it all in. Besides, what if company came? 

But, we never entertained in that tiny apartment, so it was just the two of us. We were a lazy busy couple with no dishwasher.  Every plate and bowl would get used before someone would break down have time to wash them. Dirty dishes often overflowed from the small sink. The kitchen was cluttered with all the things we had no room for in the overstuffed cabinet. It was a constant battle against chaos. 
 

When we finally moved into our house years later the dishes no longer went with my changing tastes. But rather than relegate them to the donation pile they were stored in the basement in case. In case maybe I’d grow to like them again...or perhaps our future children might want them someday. The set was one of the first things their father and I bought together as a couple so they were special, and you are supposed to keep special things. That’s what my grandmother always did.

 
My late grandmother was an antiques and collectibles dealer. She taught me the fine art of treasure hunting. She was also a hoarder that taught me the not so fine art of attaching emotional value to every object you own. It can be a pleasant notion, at first; that each item in your home tells a little story. I am by nature a story lover, so the idea of passing down heirlooms and tales that go with them has innate appeal. But other things get passed down sometimes, too. Things like habits and sensibilities that may not be practical, or worse -- can become unhealthy.  

My grandmother could have lived to see my children born. She could have told them her many stories, with or without her vast "collections". But tragically the year before I became pregnant with Megan she fell down the stairs in her home and died as a result of her injuries. It was horrific.  She lived alone in a large multilevel dwelling and refused to downsize because it would mean getting rid of too many things. When I previously wrote about her death it was with the mindset that she died where she wanted to, after a long life, in her “beloved” (and stuffed to the rafters) house. That is one way to look at it, but I am not quite so easily reconciled to that today.  

 

I have thought about my own death, for obvious reasons.  Amidst those unpleasant thoughts about my mortality comes the realization that my family will have to deal with my things...my stuff. I am not a hoarder by any means. But I do have a lot of stuff, especially for the small house we have chosen to continue living in. And in that light many of my belongings tell different stories to me now.  Along with anecdotes and recollections, some of my things also tell the story of lost time...time spent searching for items I cannot find in clutter, time spent trying to keep up with cleaning and caring for objects instead of pursuing activities that nourish my creative spirit, not to mention the time and energy used to acquire these things in the first place. Frankly, I’m not sure I can afford to waste that much time. Then again, can anyone? 

 

It has dawned on me that not every belonging has the potential to be treasure, in fact, much of it could be more akin to burden. I also realize that by striving to have less I can work towards getting more – as in getting more out of my life.  
 

How often do we say we have too much on our plates? In my case I had too many plates and not enough on them. So now whenever I consider buying anything I ask myself...how many dishes do I need? This mental shorthand reminds me about what is important. I only need enough – what is sufficient to feed my soul and the souls of my loved ones with. And in that regard, I already have plenty...I already have everything I need.

thoughts, one month later

a pressure cooker

was used as an explosive device

this cooking pot

meant

for the creation of nourishment

perverted

to butcher an innocent crowd

 

once a harmless vessel

now filled to the brim

with agony

and simmering hate

to be doled out with terror

 

what kind of hunger

drives someone to invent

such a recipe?

 

rumors of my demise are greatly exaggerated

--Mark Twain

Several people who used to read this blog feared I had died when I stopped posting, thus the infamous quote for a title. 

Of course it's more than understandable they thought that. If I read a blog written by someone with breast cancer and they abruptly stopped posting, my mind would go there. It is where anyone’s mind would go.

But I’m still alive and doing well, cancer-wise. Four years have passed since my Stage II-b  diagnosis. You know, when I first heard “II-b” it sounded like "to be" and I was immediately reminded of, “to be, or not to be, that is the question.” Silly, I know. Besides, and with all due respect to Will Shakespeare...that really wasn’t the question I was asking myself, at least not at the time.

It wasn’t the question that rattled around in my head the last couple years since the end of treatment, either. That one was: Now what? As in, this destroyed my life as I knew it...how do I move on now?

In the midst of an extended crisis I always wish I could hit some magical button and fast-forward to the time just beyond it...naturally, who wouldn’t? During chemo I would lie in bed, feeling sick and weak, and try to send my mind into that future. I kept thinking, what did I want my life to look like after this was over? What was really important to me? Those were better questions. All I needed were the answers.

Turns out it wasn’t grand ideas or unfinished dreams I longed to spend my future accomplishing. What I wanted most was just a return to the little day to day stuff. I missed the gentle rhythm of my life. Morning routines, mealtimes, bedtime rituals, those quiet patterns that weave in and out of an average day – all those moments, those times I could no longer ebb and flow with because I was suspended in another time, a time out of time...a time to be ill.

And then something vaguely resembling an epiphany came to me. The insight was pretty simple...so simple that you may find it obvious. But at the time it felt very important to me. It still does.

The way you spend most of your days is how you end up living your life.

That is the sum total when all is said and done. I didn’t care about checking anything exciting off my bucket list. I didn’t care about fixing my laundry list of regrets. And they were long lists, let me tell you. Instead I just wanted to go back to doing the simple things I already spent most of my days engaged in.  That was enough because what really mattered most were all the tiny, precious daily moments of just being.

I thought I’d hold on to these poignant little realizations and after cancer treatment my life would be filled with deeper appreciation. But that’s not what happened. In fact, it was the total opposite. By the end of treatment I became bitter, morose and riddled with self-pity. I’m not sure why...maybe the hard knocks of a cancer journey fraught with some bad luck finally took its toll. Maybe it was a stage in the natural healing process. Or maybe those sorts of crystalline realizations about existential reality are just illusive by nature. Probably a little bit of each.

Just like for good ole Sam Clemens, someday the reports of my demise won’t be an exaggeration, they’ll be true. And so it will be for everyone eventually. But for today I'm still around. I get more time to heal, more time to question, more time for savoring the sweetness of life when I find it, for appreciating the many chances I have just to be here, just to be. In regards to "the question"...it certainly sounds like the best answer. 

Of towers & tumors

Yesterday was my 46th birthday. It was the first birthday since being diagnosed with cancer. I spent my day at the hospital, first seeing the plastic surgeon for a regular visit and then the oncologist's office for bloodwork. These places have become routine, part of the eb & flow of my life now. I barely gave it a second thought. But in reflection, that's kind of sad, isn't it?

I imagine that every birthday from here on in will take on new meaning. I will be celebrating not just the day I was born, but my survivorship, another notch on my belt as the years (hopefully) roll by. Now all my birthdays will have an extra reason to celebrate tacked on to them. Perhaps it sounds ungrateful of me, but I found myself thinking that I really liked my birthdays the way they were...just a day to mark the usual passage of time… still believing I had plenty of it.

I never minded getting older, I proudly tell people my age and have no hang-ups about it. But now whenever I think of my age I can't help but calculate in my head...if I survive X amount of years, how old will I be then? It feels different. So I tried to treat yesterday like it was just any other day. The plan was to do a little celebration today when I had more time and Michael was home. Mostly for the kids' sake, as to be truthful my heart wasn’t really in it.

Today started with a wound review session from my favorite visiting nurse…and then after that I had to run to hyperbaric therapy. That whole process took six hours. Six hours devoted to cancer today. Probably about the same amount as yesterday, actually.

I was feeling pretty down about it all until I sat in the waiting room at hyperbaric medicine and looked up at the TV. They were reading the names of the World Trade Center victims. Of course, I know that 9/11 follows my birthday, living in the NYC area it has especially not escaped my notice. But I guess this year I got all caught up in cancer and sort of let the memory pass without acknowledging it.

On that fateful day 8 years ago I was home alone, still very sick from my emergency c-section and all the complications. In fact it was the first time I had been alone since Megan was born about 5 weeks earlier. My mother was planning to come later in the morning so it was only supposed to be for a few hours…just a few hours between when Michael left for work in Manhattan and my mother would come.

Ironically, September 11th had been Megan’s original due date. I remember joking with the doctor and asking if we could change it to my birthday the day before. What a wonderful gift -- a baby on my birthday after so many long years of trying.

But life had other plans and instead I almost died delivering her 5 weeks prematurely. Life often has other plans.

And on that day…that horrible, tragic day 8 years ago, I awoke from an early morning nap on the sofa to the sound of the phone ringing. I looked at the TV, left on while Meggie and I dozed, and sleepily answered the phone to hear my mother’s panicked voice. She was saying something about being able to talk to Michael for a few moments right after “it” happened…that at least he was okay as of that conversation…to try not to worry. All the while I am trying to make sense out of what my mother is saying, I am also looking at news coverage of a towering inferno on the television. And then the caption underneath finally became clear…what I am looking at is the World Trade Center. But there was only one tower. One. One where there was supposed to be two…where there had always been two towers for all these years now there was only one. How could that be? I asked my mother why there was only one tower. She didn’t answer. I said it louder…finally I shouted, “Where is the other tower???” She said quietly, “It collapsed…it’s gone.”

Just then the second tower fell. I clutched Megan and felt dread run through my body. It all made sense. Somehow, inexplicably, I had lived through her birth because the Universe or God or Whatever, was going to take Michael instead. Manhattan was under attack in some bizarro world and today I would become a sickly widow with a new baby that her Daddy wouldn’t get to see grow up.

All that day I sat with the phone in my hand. All that day I watched the TV with a sick heart like every other person with a loved one in NYC…like every other person in our country…in the world. But as we all know my husband came home. As we all know so many, many did not. Too many mothers & fathers & sisters & brothers & children…people loved and adored, needed and wanted by their friends and families…too many didn’t come home.

Thankfully Michael was in no great danger that day, tho I didn’t know that until midnight, until he managed little by little all day to make his way thru the chaos of NYC and walk across the George Washington Bridge…finally able to meet my mother who drove him all the way from Fort Lee to our front porch where I hugged him so hard I think I hurt him. We spent the next few days shell shocked and realizing how fragile life is…how lucky we were.

And again today as I listened to the all too familiar names of the dead being read aloud and I saw the towns they were from…the town where I grew up, the town I married in, the towns my babies were born in, the town I now live…again today I realized that I am still lucky. Today I am here. I now have two children, both healthy and happy. My husband came home from work again. I lived another year and a day.

Today I will make that be more than enough in their honor.

Just do it

I died once. Seriously. I took what was (almost) my last breath on the evening of August 5th, 2001. For real.

After being hospitalized for a battle with pneumonia while seven months pregnant with Megan, my blood pressure suddenly spiked. I slipped from pre-eclampsia to full tilt eclampsia and before they took Megan via emergency c-section I went into convulsions.

Finally, while in recovery with my (thankfully) healthy baby safely in the regular nursery, Michael watched as I struggled to breathe. And then there was that fateful, final breath as I coded. Right in front of him.

Needless to say, I'm still here, so there's a happy ending. But it was a long time coming. My breathing remained compromised and my blood pressure stayed high even on medication for months. Two weeks after that event I developed the addition of excruciating gallstones and was at constant risk for pancreatitus. But no surgeon wanted to touch me to remove my gallbladder -- all were afraid I wouldn't live thru even a laproscopic procedure. No one thought I would be able to care for my child. I did tho, thru sheer will, determination and pure love.

The saga of how I went from that dying woman to relative health (if you don't count breast cancer) is a long one, destined for another time. What I am writing about today is what if feels like to die. It's an uncomfortable thought for many, but I want to share my experience.

My eyes were closed and I was unable to open them, tho I didn't try very hard. Still, I remember taking that last breath. I remember it very clearly. I had no awareness that the surgery was over. For all I knew I was still under the anesthesia or just waking up, it made no difference to me. After every thing I had been thru to conceive this precious child (a saga in and of itself) in my unconscious state I couldn't think of her at all.

Instead I was completely absorbed with the process of breathing. It was the most difficult task I had ever experienced. Each breath was a struggle, and it had been for weeks. But now it was harder than ever before. I was trying with all my might to remain calm, not to panic. Like someone trying to tread water I knew that if I panicked I would drown, I would not be able to maintain my breathing. And as suddenly as that realization hit me, an inner voice said, "Just let go. You can stop now. You don't have to do this anymore, it's okay."

And so I stopped. I just simply stopped struggling, stopped breathing. A feeling of peace came over me, a sense of calm and relief the likes of which I have never known. I was almost thrilled that it was that easy. So much fighting and struggling and all I had to do was let go.

I don't remember having a choice about living or dying, just the feeling of falling and the sound of someone screaming at me, "come back, come back, come back!" After that, my next memory is waking up later in the ICU and trying to find out about my baby. It was a long, painful night until the next day when I could finally hold my precious little girl. That memory too is powerful, in fact, more powerful than life or death. It was only the horror that I could have left her behind that made me glad to be back in my suffering body again, more than glad, I was elated...and grateful.

I carried away many insights from that trauma, some still reveal themselves to me now, nearly 8 years later. I consider my daughter's birthday my re-birthday because it was the beginning of a journey to health and a new life. You don't realize how precious something is, sometimes, until you almost lose it.

In a literal sense I found out death itself is nothing to fear. True, the time leading up to it may be more horrendous than anyone can imagine if you suffer from prolonged illlness, but the end part is simple, peaceful and soothing. I find that to be a great comfort. Especially now as I face an illness that could be what I eventually die from, tho I am as determined to avoid that fate now as I was to live once I came back from the dead on that August day.

I also can't help but think in metaphorical terms and find a life lesson in the symbolism. I had struggled alot in my life, I had railed against inevitabilities and prior traumas, held on tightly to my many wounds. It had left me battle scarred and more weary than I can describe. I needed to just let go, but somehow I couldn't. Over the first years of Megan's life as I dealt with recovery and motherhood I realized letting go is easier than we think. It really comes down to an infamous cliche of three little words: Just do it. Nothing is so important that it can't be let go if need be.

Oh, except life itself. That's worth the struggle at all costs to the bitter end. But when that end naturally comes, letting go of even that can be simple, gentle and freeing.

I will not go gentle into that good night, but when the night is over, many, many healthy years from now, there is peace waiting for me...for us all.

Trust me, I've been there, done that.