Accomplished what I set out to do: convinced oncologist to send my specimens to Oncotype & plastic surgeon from different hospital prescribed hyperbaric therapy. The two hospitals we went to were far enough apart that it took the whole day. Spending that much time in a car in my condition is not the most comfortable thing in the world, let me tell ya.
The dual issues I am dealing with now are figuring out what kind of chemo I need and how long I can safely wait to start it. Wounds don't heal on chemo, my breast needs to heal, so the longer I can safely postpone chemo the longer we can wait and see how much more my breast skin heals before we go removing any of it that doesn't look good. Every day counts and every spec of skin does too.
Aside from the when we have the question of what, as in what type of chemo. According to this oncologist, no surprise -- I'm in the gray area. Some would treat me as node positive, some as node negative. Some would also recommend going back and removing all my lymph nodes, others would not.
So, first up -- I need to do find a breast pathologist to reassess my sentinel node biopsy to get a more accurate picture. Thing is, pathologists usually don't talk to patients directly...they do their lab bit and give reports to other doctors. Here I go again, bucking the system. See, this is why doctors don't know what to make of me, lol.
For now, I have alot of waiting to do. I wait until Thurs for my plastic surgeon to come back. I wait to find out my Oncotype score. I try to find the breast pathologist. I start hyperbaric therapy -- where I lay in a tube for 2 hours, 5 days a week waiting for the oxygen to do its thing. I wait to see how much better or worse my skin gets. Besides that, I keep researching.
This is getting to be same old, same old. I thought after the surgery things would be straightforward for a while, either chemo or no -- simple, definitive, no more vagaries, no more decisions for me to make. I thought that my days of Googling my brains out and seeing a gazillion doctors each with vastly differing opinions to wade thru would finally be over.
What the heck did I do with my time before all this cancer shit???